NDF International Scientific Consortium Meeting, Los Angeles, 2019

NDF hosted an unprecedented gathering of members of its consortium of international scientists and doctors in Los Angeles in our continued effort to work collaboratively with all scientific stakeholders working on GNE Myopathy.

NDF Arts Gala, Los Angeles, 2019

NDF’s second annual Art Gala was a huge financial success and brought together community members, patients, and scientific consortium members from all over the world.

PADM Patient and stakeholder meeting in Tokyo, Japan, 2019

NDF CEO, Lale’ Welsh, presented at and participated in a symposium for patients hosted by the Patient Association for Distal Myopathies, our partners in Japan.

GNE Myopathy stakeholder meeting in Mumbai, India, 2019

NDF CEO, Lale’ Welsh presented at and participated in a GNE Myopathy Stakeholder Meeting hosted by World Without GNE Myopathy, our partners in India.

6th Annual NDF Symposium on GNE Myopathy, Tel Aviv, 2019

NDF’s Sixth Annual Symposium on GNE Myopathy was held in multiple locations including Tel Aviv, Israel and was attended by local patients, family members, scientists as well as a panel of international presenters. important, biologic samples were collected for inclusion in our biobank.

6th Annual NDF Symposium on GNE Myopathy, Philadelphia, 2019

NDF’s Sixth Annual Symposium on GNE Myopathy was held in multiple locations including Philadelphia and was attended by local patients, family members, scientists as well as a panel of international presenters. important, biologic samples were collected for inclusion in our biobank.

NDF Ambassadors – A Night Together Dinner

NDF’s Ambassadors gathered a large group of young adults together for an important evening of education about GNE Myopathy and a presentation a from a genetic counselor about the importance of pre-conception genetic screening.

GNE Myopathy Patient Day, Ivory Coast, 2019

Orgnized with NDF by NDF Certified Patient Advocate, Okoma Rose, NDF sponsored this meeting which brought together patients, family members and physicians in the Ivory Coast in an effort to help educate people about and get diagnoses for GNEM Myopathy and other neuromuscular diseases.

NDF Gala for the Arts, Los Angeles 2018

NDF’s first ever art gala was a tremendous success, raising over $1Million toward our research and programs.

NDF 5th Annual Symposium on GNE Myopathy, Los Angeles 2018

NDF’s 7th Annual GNEM Symposium, held at UCLA in Los Angeles, was a two day, fact-filled event that gathered patients, family members, leading scientists and expert physicians from all over the world in an effort to educate and share information about GNE Myopathy.

GNE Myopathy Patient Day, United Kingdom, 2018

Organized with NDF by NDF Certified Patient Advocate in the UK Mona Patel, NDF sponsored a GNE Myopathy Patient Day in Manchester, England for regional patients. Among the presenters was Dr. Nuria Carrillo from the NIH, Dr. Zohar Argov from Israel, and NDF C.O.O. Nancy Lurie.

Patient Day on GNE Myopathy, Istanbul, Turkey, May 2018

Organized with NDF by NDF Certified Patient Advocate in Turkey, Dr. Suleyman Kus, NDF sponsored a GNE Myopathy Patient Day in Istanbul, Turkey, for regional patients. Among the presenters were Dr. Coskun Özdemir, Founder and President of The Turksih Muscle Diseases Assocation, Dr. Stella Mitrani-Rosenbaum from Hadassah Medical Center in Jerusalem and NDF C.E.O. Lalé Welsh.

We are currently in the process of adding more of our past events as we build this page. Thank you for your patience.

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